Monday, June 29, 2009
Now we have to figure out what happened. I did call metabolics, and also her pediatrician. It probably has nothing to do with CG, but what was this? I really do not want to ever experience something like that again...it was so scary. And I am not sure, if I can venture away from the metro area for a while ...
Sunday, June 28, 2009
P.S.: Any point to this...of course, you know that not once I thought about the dietary issue?!
Friday, June 26, 2009
I do not recall if I shared the info on Annie's bunny crackers before; I just have the worst allergies which is now turning into a miserable cold. So I am actually feeling very sorry for myself...ha, ha, ha... OK - enough about me. Here is the link to Annie's http://www.annies.com/bunny_grahams. The flavors available include chocolate, graham, cinnamon, and chocolate chip. They are all very tasty. The girls love the shape and taste of them :) Happy snacking...
What are you doing this summer? I would love to hear from you.
Wednesday, June 24, 2009
This recall was just released. Pls click on link for details
La Mexicana, Inc. Issues Allergy Alert on Undeclared Milk and Milk Products in Tortilla Chips
Tue, 23 Jun 2009 21:18:00 -0500
La Mexicana, Inc., of Seattle, Washington, is recalling Solena Tortilla Chips with a June 03, 2009 code date, because they may contain undeclared milk and milk products
Thursday, June 18, 2009
Maybe it is a European thing. I noticed it also in Germany. We met with a couple of different parents who have kids with CG. I was shocked to hear that they have "disability passes" for the kids and themselves. The reason for it is that there are tax advantages, and entrance fees to zoos, etc. get waived. But is that a valid reason to label your child as disabled??? - I could rant on about that for a long time, but will get off my soap box now. Please let me know what you think...
Oh, and sorry if I am ranting. I feel that my writing "mojo"still is not completely back ;)))
Smith Dairy Announces Voluntary Recall on SMITH'S Tea with Lemon in Gallon Size Only
Tue, 16 Jun 2009 18:55:00 -0500
Smith Dairy Products Company today announced a voluntary recall on SMITH'S Tea with Lemon in gallon size, lot no. 07/07/09
Wednesday, June 17, 2009
Salt (I use Kosher)
- Snap ends of asparagus
- Put asparagus in baking dish (best in single layer - but two layers are OK)
- Drizzle with ample olive oil and toss
- Sprinkle with salt and toss
I bake the asparagus for about 15 minutes (the last 15 minutes with the chicken) at 400 F. Just check it until you like it...Delicious.
And with all of that there was couscous which is one of my easy stand by sides...and you know what? The entire family loved dinner last night. There was not one piece of chicken, or asparagus left over...
Tuesday, June 16, 2009
Here is how I think we are just a tiny bit different. Before hand, I told the mother of Alena's friend that she has CG and therefore needs to avoid all types of milk sugar. In addition, I also gave a little breakdown as well as a link to the blog entry "about Galactosemia". I certainly do not want to scare parents about it, but need to make them aware...The mother and I talked about that PB&J sandwiches would be great for both kids. I brought along a couple slices of bread for Alena. For treats I made Chocolate Chip Cookies for everybody...the play date was great fun for everybody. The bottom line so is, that there is no need to shy away from play dates or be afraid of them. Its all in the preparation, and of course the child has to be aware of the foods they cannot have. Alena now always asks...
Have a great day everybody.
Friday, June 12, 2009
Thursday, June 11, 2009
I am posting this to the regular posts and will update the sidebar later. Pls let me know how you like this format
Wed, 10 Jun 2009 22:27:52 -0500
Pilgrim's Pride Corp., a Mount Pleasant, Texas, establishment, is recalling approximately 608,188 pounds of frozen poultry products because they may contain the undeclared allergens milk, soy, and wheat.
Wednesday, June 10, 2009
After the 1/2 hour everybody got a treat and you know what? They were pop sickles which the girls could have as well. I don't think I have to tell you how happy that made me...In school Galactosemia really turns out to be NO BIG DEAL. Who would have thought? I certainly would not have believed it. I was just so happy that the girls did not to be singled out, and could join everybody else. The point of this post? Well, I would have never, ever thought to be able to integrate our kids "just like that" and I am just so thrilled that it is possible. Life is great :)))
Saturday, June 6, 2009
125 GRAM of Earth Balance, or other vegan margarine
125 GRAM of fine sugar
2 Egg yolks
50 GRAM corn starch
125 GRAM Cup flower
1 teaspoon baking powder
750 GRAM Rhubarb
2 Egg white
200 GRAM Cup of sugar
1 teaspoon of lemon juice (I have omitted this before)
1 pinch of Salt
Preheat oven to about 350 degrees F (170 Celsius)
- Peel rhubarb and cut into about 1/2 inch long pieces
- Mix up batter
- Pour batter into baking form
- Top batter with rhubarb
*** Bake for about 20 - 30 minutes until the dough is slightly golden
- Beat Egg White with salt to egg snow, add lemon juice, and sugar very slowly
- Spread egg white mixture (it should be very firm) over the baked cake (rhubarb)
- Bake for another 20 - 30 minutes until meringue turns a little brown.
I found this recipe on a German Blog...take a look at the pictures. It tastes just as great as the pictures look...http://schnuppensuppe.de/blog/index.php?itemid=341
Please let me know if you like this recipe :) - Happy baking...
Thursday, June 4, 2009
Happy Thursday everybody...
Wednesday, June 3, 2009
Happy travels :)))
Other great news comes from
- France, a Galactosemia Mom gave birth she is also nursing her baby
- Great Britain, a woman who is a Galactosemia is pregnant
I am so excited to share this...
Tuesday, June 2, 2009
We packed a picnic, beach toys, sun tan lotion, and off we were. All of us like Canon Beach a lot its downside is however, that a ton of others like it too so it gets very crowded. Therefore we decided to drive to Nehalem Bay State Park. It was GREAT!!! No crowds, and we found the ideal spot in the dunes. Both girls ran up the dunes, rolled back down, or Alena tumbled back down. It certainly made them hungry :) Just so glad that we packed our picnic, as the food issues is generally a little tricky at the beach. One thing to remember is that there is a little organic food store in Manzanita and they also sell vegan ice cream...
Here is a link to the State Park...http://www.oregonstateparks.org/park_201.php