Mia Rosie and I went shopping today in order to refill the pantry for another busy week ahead. Today we found lots of great treats to last at least a couple of weeks. Tofutti frozen Blintzes - I am thinking that they will be a gerat after school snack; Chocolate covered anana slices for a treat, and Dairy Free Mochi for desserts. Both of those are Trader Joes brand. The Mochi is filled with coconut ice cream. They Look beautiful :) - I am so excited that there are so many safe treats for the girls and also about the confidence I have found. For us Galactosemia is part of our lives, absolutely manageable, and in some quirky way also a gift. A gift, because it gives me perspective and recognize what's truly Important in life :) Remember the glass is always half full :)))
7 comments:
I love your blog. I have 2 sons (20 and 13) with classic galactosemia. I'm so happy to hear someone actually going by the European Diet, using the cheeses they recommend. I've wanted to try the cheeses for a while, but my sons are still afraid of it. Now I have someone to refer them to. Thanks for the wonderful new reference.
Thank you for your kind words and encouragement. What are they afraid of? We have several friends in Europe with children who have CG, they all stick to the European diet. None of them follow the Acosta diet.
FYI - we hv friends in Italy also with two CG kids. Their daughter loves cheese, while their son does not care for it at all :)
We've basically been following the European diet for years (except for the cheese part). I always thought it was silly to limit vegetables and legumes. I've always treated galactosemia as a challenge to be creative in feeding my boys. Eric and Noah both love to cook, and love to eat.
We've been to a local (Texas) conference with other galactosemia families, and were stunned at how limited and afraid they were about food. I brought homemade chocolate chip cookies and fudge to share. You should have seen the reaction: priceless. These other kids thought I was trying to poison them.
We had a long talk with the other parents about trying harder to fit in, and not making your kids feel like they were so different and fragile. I'm so happy to find another mom that feels the same way!
FYI: The 2012 National Galactosemia Conference will be held in our hometown Grapevine, Texas. Hope you can make it.
Great to hear, Sonjia. Why don't you send me an email -> contact me button and we can take our conversation off line?!
Oh, and one thing our girls are certainly not is fragile :) strong empowered young girls :)
Nice blog! I'm a 40 year-old with Galactosemia. Although most of my childhood Halloween memories are unpleasant, I've always had a great ice-breaker story, or a great line to meet women in a bar. Not to glamorize the disease...but it could be a lot worse and it's been fun. Keep spreading the word! No whey! Sweet...that's great!
Thank you so much!!!! - I very much appreciate to hear from you. Really!!! :) Hope to hear from you again!
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