Skadi lives in Germany's capital Berlin with her Mom, Dad, and little sister. I first met Skadi's Mom Ulrike via the internet back in late 2006. At this time, I am not sure if we originally met through the German Galactosemia support group or just by chance online. All of us met in 2008 in Berlin where Skadi with her family showed us many of the great sights of the German capitol.
Now are you ready to get to know Skadi and hear her story as told to me by her Mom, Ulrike.
|First picture of Skadi and her Daddy|
At first - like probably most of us - Ulrike was upset as she had never heard of this strange disorder called Classic Galactosemia. Through the metabolic clinic at Charite she was put in touch with another family whose child also had Classic Galactosemia. That mother was able to give Ulrike much of the information she was longing for. What was life, the diet for kids with Classic Galactosemia like? Today both families remain friends.
Skadi is now a healthy 2nd grader; she loves to sing, dance, draw, and make crafts. You know, a regular girl...
|Skadi and her Mama in 2013|
Are you interested in being featured? If so, please contact me by sending an email to germanpdx (at) gmail(dot)com