Saturday, June 28, 2008
So here is the info in case you are interested
Brand "Road's End Organics", Organic, Dairy Free 123'x Chreese - The company also has a website at www.chreese.com. It looks like they also have Nacho Chreese Dips, Chreese Packets, Gravy mixes, and other types of pasta & chreese.
Have a great day all its super hot today in PDX...
Wednesday, June 25, 2008
When we picked her up today at the end of camp she was SO excited. "Mommy, mommy I made pizza and ate it too...." If that does not make the Mommy heart sing then what will :)
Have a great rest of the day.
Saturday, June 21, 2008
As for restaurants we have found that people are (generally) really, really nice and there is ALWAYS something for the girls to eat. Stay away from ham, sausages, salami because you just never know and they most likely do not have the labels in the kitchen but here are some options. Of course, always ask to make sure its OK
- Pasta with olive oil & garlic
- Pizza with tuna, veggies (just make sure that the dough is w/o milk, and the sauce w/o any milk products)
- Schnitzel (w/o gravy, no breading) and fries; any type of meat w/o breading
- Salad --> get it without dressing as a lot of dressings in the Germanic world contain buttermilk, sour cream, etc.
- Plain pasta
These are just a few things that we have found work for our kids. Keep in mind that coffee shops, etc. do generally not carry soy milk so you should always bring that along. Our kids are still small and I learn so much more every trip we take.
If you have any experience with travel I would love to hear from you...
- I order special meals for the girls and myself. For the girls I order vegan, and for myself I order the lactose free meal => I have ordered a Kosher meal before was not ideal, but may be a great option for others
- We bring on additional food, and soy milk for the girls. The food we bring is enough to last through the entire trip, as we have to either take another flight, or two more trains to arrive in Tuttlingen
- We get a note from our pediatrician stating that our girls have CG and therefore need to bring their own food & drinks (for security)
So the trip is covered. If the girls want something once we arrive...well (hate to admit this) there is always McDonald's, or french fries, or fruit, or (if they are really hungry) schnitzel w/o the breading and w/o any gravy...We just really stay away from bread as I am too tired to find out whether its OK or not :)
I have to confess, that I have taken the hamburger buns along to restaurants. The buns at the restaurants we have been to generally all have whey, or they may not have the labels available. At some places we get the burgers on Pita (at all the McMenamin's restaurants for example), but it is a nice option to bring your own. We just get the burger with all the fixings and put it on the bun when the food arrives. The downside to bringing the bread along is that it can get messy (as I keep it in my purse), you need to carry it around with you, etc. It is however a nice option, as most hamburgers in general are "safe". We of course always ask just to make sure...
Tuesday, June 17, 2008
I want to share with all of you some of the items we have found at Trader Joe's. The names on these items
- Frozen Sweet and Sour Chicken
- Fish Sticks
- Krinkle Potatoes
- Cheeseless Pizza --> my kids LOVE this pizza. The can almost eat the entire pizza by
themselves. They are 4 and 2 so its a lot of pizza :)
- There are some vegan simmer sauces and you just pop in your protein
- Tofutti Blintzes
- Orange Creamy Soy Ice Cream Bars
Check out the entire list of vegan items http://www.traderjoes.com/Attachments/Vegan.pdf Trader Joe's has.
Monday, June 9, 2008
Pareve food and drink can be consumed with either dairy or meat meals..."
Recipe calls for Substitute
Butter Earth Balance Margarine (comes in a tub and in sticks which are
great for baking)
Margarine Earth Balance Margarine
Sour Cream Tofuti Sour Cream
Cream (sweet) Soy Creamer plain
Milk Soy, or rice milk (depending on the recipe I use non-sweet, or
Cream Cheese Tofuti Cream Cheese
Cheese Depending on the recipe I may leave it out, or (on pizza, or
lasagna) I use Vegan Cheese from Vegan Gourmet. It comes in 4
different kinds and really melts wonderful
Bread Crumbs Either Matzo Meal I use
Buttermilk For one cup of milk you use, and 2 TBS Lemon Juice
Chocolate Chips I use Trader Joe's Chocolate Chips - they are Parve
Ice Cream - Rice or Soy ice cream - I like Soy Delicious while my husband really loves rice milk ice cream. The kids love either or :)
Yogurt - Soy Yogurt, we love Whole Soy Brand
Sunday, June 8, 2008
When you go to Sweet Pea. Have a bagel with their home made cream cheese on it. It is "bacon" scallion, and just so delicious. The cup cakes are outstanding. On the weekend they also serve brunch for $10. Of course everything is vegan, and free of any type of milk sugar. Doesn't that make your heart sing? It sure makes mine sing :)
At the second party all kids were decorating cup-cakes (including my daughter). I am so amazed at this four year old. Not being able to eat items other kids can have is no big deal. She asks whenever there is food whether it is OK, or not. WOW...and it was just understood that it is OK that she has a different cup-cake.
The kids have snack days at pre-school. For my daughter's day we brought Whole Soy Vanilla Yogurt (we just love that stuff), strawberries, and bunny crackers. The other kids asked whether this was yogurt everyone including my daughter can have. These kids really amazed me. They were so excited that my little could also have yogurt that day.
Galactosemia to me really has become a way of life. It is an opportunity, it can be a little challenging at times, but truth be said...after E.Coli Mengengitis, and Sepsis this is all a piece of cake. You can make life difficult, or you can make life easy and livable. You can make Galactosemia a center of your life, or a part of your life. For me (us) Galactosemia is not the center of our life, but a part of it. I think of all the great things that come from it. We meet great people, make friends with people that we would otherwise have no contact with. Last year we met (and stayed) with a family in Northern Italy who also has two kids with this disorder, we know a family in Berlin, and many more. What great opportunity...Of course there are hard parts to it. Blood draws are always the worst for me. I just feel so guilty about having given my girls this gene. And then of course when my oldest asks me why we need to go to the draws and she told me "I do not want to have Galactosemia"...Those are hard days bringing me to the verge of tears. Those days I must remember what to be grateful for...I have two beautiful, healthy children. The girls are bi-lingual, growing beautifully what else could we want.