We just got back from clinic at OHSU. Both girls are doing fantastic, that is always good to hear :)
I am so happy with our physician and dietitian. Our dietitian is really interested in Galactosemia and it is empowering to work with a professional who really cares. Our doc of course is outstanding. Incidentally he is the same doc who tracked us down when Alena's Newbornscreen came back positive for CG. We credit him and our pediatrician for saving her life. He has been such a great advocate for us and empowering us in every way. We are raising the girls bi-lingual and never once did he raise any concern about that. Today he was impressed with the speech of both girls, and also that there is no fuss about items they cannot eat. Makes me happy...
Happy Tuesday...
