The diet is easy, isn't it Ron said to me a couple of days ago. What do you mean, I responded, it's easy here in PDX, but our trip to Chicago showed that it can be challenging. His response...think back five years ago when Alena was in the hospital...
Going back five years, Alena was readmitted to the hospital less than a week after she was born. We were given the strange diagnosis of Classic Galactosemia and were told that she may develop E. Coli Mengengitis. Less than 24 hours later she did develop E. Coli Mengengitis and had sepsis. She needed blood transfusions, she had a PIK line, she had a catheter and infusions, she weighed no more than 5-1/2 lbs. We did not know whether she would survive, and if so whether there was any damage to her brain. I was on my hands and knees in the hospital chapel begging for my baby to survive. Ron and I decided that if our baby suvives, managing a special diet will be a piece of cake. Here we are five years later. Alena IS completely health, she is thriving, and when thinking back to her first few weeks of life, managing the diet IS a piece of cake. Ron is right, the diet IS easy.
