Luckily, we never had to experience anything like that with Mia Rose. The reason for that is also simple - the Newborn Screen test. For our second child we had also arranged to purchase an additional, supplemental test as Oregon does not screen for all disorders on the panel. Unlike Alena, she had not had anything but Soy formula so changes for her getting ill were much more remote.
What would have happened if, the test had not been performed on either of my children? - One thing many people do not know is that the Newborn Screen tests for disorders which are treatable if detected early. Even so the children may appear health at birth babies with these disorders may decline in health, have irreversible damage, or die. Here is one family story which posted at the Web-site of the Save Babies Through Screening Foundation http://www.savebabies.org/family-stories_nora.html The Newborn Screen prevents just that for these treatable disorders. Please pass this information along. It could save a babies life! And yes, many people have never heard of any of these disorders, or have any family history.
Here is a fantastic video by the Save Babies Through Screening Foundation it explains what happens and what to expect from the test http://vimeo.com/34898727. Please watch it and also visit this amazing, resourceful web-site www.savebabies.org
|Our happy and healthy girls - health and alive because of Newborn Screening|